UMB Data Catalog
A project of the Health Sciences and Human Services LibrarySleep Disturbances in Neurobehaviorally Challenged Children with Sickle Cell Disease
UMB Dataset
UID: 89
- Description
- Children with sickle cell disease (SCD) experience neurodevelopmental decline over time. They also tend to have short duration, poor quality sleep and elevated fatigue levels. This study measured sleep via actigraphy over one week and cognitive and behavioral measures in 19 children and adolescents with SCD. Aged 7-18 years, the majority of participants were referred for neurodevelopmental testing due to academic or behavioral difficulties. Data was collected from parent report, medical record, and included age, sex, race, SCD genotype, results of neuroimaging studies including brain magnetic resonance imaging (MRI) and transcranial Doppler (TCD) velocities, and current use of hydroxyl urea or chronic blood transfusion. Additionally, parents completed the Behavior Rating Inventory of Executive Function (BRIEF), participants completed the Wide Range Achievement Test (WRAT), and both completed the PedsQL Multidimensional Fatigue Scale.
- Timeframe
- 2013 - 2015
Child (2 years to 12 years)
Adolescent (13 years to 18 years)
Female
Male
-
Access via Open Science Framework (OSF)
https://doi.org/10.17605/OSF.IO/H6NAJ
- Access Restrictions
-
Unrestricted access
- Access Instructions
- Available via the Open Science Framework (OSF)
- Associated Publications
- Data Type
- Equipment Used
- Software Used
- Study Type
-
Observational
- Dataset Format(s)
- Microsoft Excel, SPSS
- Data Collection Instruments
-
PedsQL Multidimensional Fatigue ScaleWide Range Achievement Test Version 4 (WRAT-4)Behavior Rating Inventory of Exectuive Function (BRIEF)
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