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Sleep Disturbances in Neurobehaviorally Challenged Children with Sickle Cell Disease
UMB Dataset

UID: 89

Author(s): Valerie E. Rogers*, Eboni I. Lance * Corresponding Author
Description
Children with sickle cell disease (SCD) experience neurodevelopmental decline over time. They also tend to have short duration, poor quality sleep and elevated fatigue levels. This study measured sleep via actigraphy over one week and cognitive and behavioral measures in 19 children and adolescents with SCD. Aged 7-18 years, the majority of participants were referred for neurodevelopmental testing due to academic or behavioral difficulties. Data was collected from parent report, medical record, and included age, sex, race, SCD genotype, results of neuroimaging studies including brain magnetic resonance imaging (MRI) and transcranial Doppler (TCD) velocities, and current use of hydroxyl urea or chronic blood transfusion. Additionally, parents completed the Behavior Rating Inventory of Executive Function (BRIEF), participants completed the Wide Range Achievement Test (WRAT), and both completed the PedsQL Multidimensional Fatigue Scale.
Timeframe
2013 - 2015
Subject of Study
Subject Domain
Population Age
Child (2 years to 12 years)
Adolescent (13 years to 18 years)
Subject Gender
Female
Male
Keywords
Access via Open Science Framework (OSF)

https://doi.org/10.17605/OSF.IO/H6NAJ

Access Restrictions
Free to All
Access Instructions
Available via the Open Science Framework (OSF)
Associated Publications
Data Type
Equipment Used
Actiwatch 2
Software Used
SPSS, v. 21
Study Type
Observational
Dataset Format(s)
Microsoft Excel, SPSS
Data Collection Instruments
PedsQL Multidimensional Fatigue Scale
Wide Range Achievement Test Version 4 (WRAT-4)
Behavior Rating Inventory of Exectuive Function (BRIEF)