UMB Data Catalog

UMB Dataset

Alternate Title(s): Caregiver Treatment Preferences for Children with ADHD
Authors: Susan dosReis
Description: This dataset is the result of an investigation of caregivers’ management and treatment preferences for their ADHD child. From January 2013 through March 2015 a total of 184 caregivers of children 4 to 14 years of age were recruited from primary care, pediatric outpatient clinics, and support organizations in Maryland. The study explored caregiver variability and priorities when considering medication,...
Subject: Attention Deficit Disorder with Hyperactivity

Caregivers

UMB Dataset

Authors: Susan dosReis

Ahrang Yoo

Monique Kim

Melissa M. Ross

2 more author(s)...
Description: This qualitative inquiry investigated caregivers’ experiences with care management services for their child diagnosed with both cognitive and mental health needs. Study eligibility requirements included caring for a child 26 years of age or younger at enrollment, with an intellectual or cognitive developmental disability, and who also had a mental health condition. A total of 37 caregivers participated,...
Subject: Caregivers

Comorbidity

Decision Making

Developmental Disabilities
Timeframe: 2014

UMB Dataset

Authors: Susan dosReis

Wendy Castillo Camelo

Melissa M. Ross

Saad Tariq
Description: This pilot study tested the use of a best-worst scaling (BWS) instrument to aid caregivers of a child with mental health comorbidities in clarifying preferences for treatment outcomes. BWS methodology closely approximates real-life decision-making by requiring the selection of one “most important” and one “least important” among a group of competing attributes. 38 caregivers were recruited from support...
Subject: Caregivers

Comorbidity

Decision Making

Developmental Disabilities
Timeframe: 2015

UMB Dataset

Authors: Susan dosReis

Wendy Castillo Camelo

Melissa M. Ross

Marcy Fitz-Randolph

2 more author(s)...
Description: This study investigated a systematic process for using qualitative data to identify attributes and levels most important to caregivers in making health care treatment decisions. Grounded theory methodology was selected for its suitability in assessing an individual’s response to a specific experience. Stakeholder advisors worked with academic researchers in all phases of the project. A total of 48...
Subject: Caregivers

Comorbidity

Decision Making

Developmental Disabilities

UMB Dataset

Authors: Susan dosReis

Crystal L. Barksdale

Andrea Sherman

Kate Maloney

1 more author(s)...
Description: This dataset is the result of continued analysis of data collected from qualified, semistructured telephone interviews of 48 caregivers of newly diagnosed children. The initial evaluation of interview results focused on their early views of ADHD treatment and the decision to initiate and continue medication for their child (see “Related Datasets” below”). This study concentrated on how caregivers and...
Subject: Attention Deficit Disorder with Hyperactivity

Caregivers

Psychotropic Drugs

Social Stigma

UMB Dataset

Authors: Susan dosReis

Matthew P. Mychailyszyn

Sara E. Evans-Lacko

Alicia Beltran

2 more author(s)...
Description: This study investigated the relationship between caregivers’ early views of ADHD treatment and the decision to initiate and continue medication for their child. 48 caregivers of newly diagnosed children participated in qualitative, semistructured telephone interviews with 6 and 12 month follow-ups. Analysis of the initial interview responses revealed 4 categories associated with caregiver perspectives:...
Subject: Attention Deficit Disorder with Hyperactivity

Caregivers

Psychotropic Drugs

UMB Dataset

Authors: Susan dosReis

Julie Magno Zito

Daniel J. Safer

Karen L. Soeken

2 more author(s)...
Description: 247 caregivers of a child diagnosed with ADHD completed a survey to assess their attitude and level of satisfaction with their child’s stimulant treatment. The participants were recruited from six pediatric facilities associated with a large health maintenance organization (HMO). Eligibility requirements included: a) the child was under 20 years of age, b) had taken ADHD medication within the last...
Subject: Attention Deficit Disorder with Hyperactivity

Caregivers

Psychotropic Drugs

UMB Dataset

Authors: Susan dosReis

Arlene Butz

Paul H. Lipkin

Julia S. Anixt

2 more author(s)...
Description: This dataset consists of survey responses from 57 African American parents/caregivers whose child was receiving care for ADHD in a university-affiliated pediatric primary care unit. The 47 item questionnaire entitled Attitudes, Satisfaction, Knowledge, and Medication Experiences (ASK-ME) was developed by the primary author to assess views of stimulant medication for ADHD. In addition to demographic...
Subject: Attention Deficit Disorder with Hyperactivity

Caregivers

Psychotropic Drugs