UMB Data Catalog
A project of the Health Sciences and Human Services LibraryEngaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs
UMB Dataset
UID: 32
- Description
- This qualitative inquiry investigated caregivers’ experiences with care management services for their child diagnosed with both cognitive and mental health needs. Study eligibility requirements included caring for a child 26 years of age or younger at enrollment, with an intellectual or cognitive developmental disability, and who also had a mental health condition. A total of 37 caregivers participated, 6 of whom were selected for in-depth interviews with the remaining 31 distributed among 5 focus groups. All sessions were recorded and subsequently transcribed verbatim. Data includes family demographics, child characteristics (e.g. school grade level, diagnoses, treatment, behavioral problems, etc.), and the factors promoting family engagement in care management
- Timeframe
- 2014
Adult (19 years to 64 years)
Child (2 years to 12 years)
Adolescent (13 years to 18 years)
Female
Male
- Access Instructions
- Please contact Dr. Susan dosReis
- Associated Publications
- Data Type
- Equipment Used
-
Digital Recorder
- Study Type
-
Observational
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