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UMB Dataset
Stigmatizing Experiences of Parents of Children with a New Diagnosis of ADHD
- Authors
- Susan dosReisCrystal L. BarksdaleAndrea ShermanKate Maloney1 more author(s)...
- Description
This dataset is the result of continued analysis of data collected from qualified, semistructured telephone interviews of 48 caregivers of newly diagnosed children. The initial evaluation of interview results focused on their early views of ADHD treatment and the decision to initiate and continue medication for their child (see “Related Datasets” below”). This study concentrated on how caregivers and...
- Subject
-
Attention Deficit Disorder with HyperactivityCaregiversPsychotropic DrugsSocial Stigma
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UMB Dataset
The Meaning of Attention-Deficit/Hyperactivity Disorder Medication and Parents' Initiation and Continuity of Treatment for Their Child
- Authors
- Susan dosReisMatthew P. MychailyszynSara E. Evans-LackoAlicia Beltran2 more author(s)...
- Description
This study investigated the relationship between caregivers’ early views of ADHD treatment and the decision to initiate and continue medication for their child. 48 caregivers of newly diagnosed children participated in qualitative, semistructured telephone interviews with 6 and 12 month follow-ups. Analysis of the initial interview responses revealed 4 categories associated with caregiver perspectives:...
- Subject
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Attention Deficit Disorder with HyperactivityCaregiversPsychotropic Drugs
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UMB Dataset
Parental Perceptions and Satisfaction with Stimulant Medication for Attention-Deficit Hyperactivity Disorder
- Authors
- Susan dosReisJulie Magno ZitoDaniel J. SaferKaren L. Soeken2 more author(s)...
- Description
247 caregivers of a child diagnosed with ADHD completed a survey to assess their attitude and level of satisfaction with their child’s stimulant treatment. The participants were recruited from six pediatric facilities associated with a large health maintenance organization (HMO). Eligibility requirements included: a) the child was under 20 years of age, b) had taken ADHD medication within the last...
- Subject
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Attention Deficit Disorder with HyperactivityCaregiversPsychotropic Drugs
-
UMB Dataset
Attitudes About Stimulant Medication for Attention-Deficit/Hyperactivity Disorder Among African American Families in an Inner City
- Authors
- Susan dosReisArlene ButzPaul H. LipkinJulia S. Anixt2 more author(s)...
- Description
This dataset consists of survey responses from 57 African American parents/caregivers whose child was receiving care for ADHD in a university-affiliated pediatric primary care unit. The 47 item questionnaire entitled Attitudes, Satisfaction, Knowledge, and Medication Experiences (ASK-ME) was developed by the primary author to assess views of stimulant medication for ADHD. In addition to demographic...
- Subject
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Attention Deficit Disorder with HyperactivityCaregiversPsychotropic Drugs
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UMB Dataset
Best-Worst Scaling to Prioritize Outcomes Meaningful to Caregivers of Youth with Mental Health Multimorbidities: A Pilot Study
- Authors
- Susan dosReisWendy Castillo CameloMelissa M. RossSaad Tariq
- Description
This pilot study tested the use of a best-worst scaling (BWS) instrument to aid caregivers of a child with mental health comorbidities in clarifying preferences for treatment outcomes. BWS methodology closely approximates real-life decision-making by requiring the selection of one “most important” and one “least important” among a group of competing attributes. 38 caregivers were recruited from support...
- Subject
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CaregiversComorbidityDecision MakingDevelopmental Disabilities
- Timeframe
- 2015
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Global Health Data Exchange
- Description
The Global Health Data Exchange (GHDx) is a catalog that provides relevant data on population health. The catalog contains surveys, censuses, vital statistics, and other health-related data. The GHDx was created by the Institute for Health Metrics and Evaluations (IHME), an independent global health research center at the University of Washington. The GHDx is a place where information about data is...
- Subject
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Global HealthPublic Health
- Access Rights
- Unrestricted access
- Local Experts
- Peter Memiah
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UMB Dataset
Factors Associated with Outcomes of Pre-ART HIV Care
- Alternate Title(s)
- Factors Associated with Outcomes of Pre-Antiretroviral HIV Care
- Authors
- Kristen A. StaffordLucy W. NgangaTuhuma TulliKaren G. Fleischman Foreit
- Description
In 2015 the World Health Organization (WHO) eliminated CD4 restrictions for initiating antiretroviral therapy (ART) for people living with HIV (PLHIV) in developing countries. However, the success of therapy is also dependent upon additional health and demographic characteristics of HIV patients at the time they enroll in care. This study investigated pre-ART (time between enrollment and initiation...
- Subject
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HIV Infections
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UMB Dataset
Immunologic Response to ART by Age Among Treatment-Naive Patients in Sub-Saharan Africa
- Alternate Title(s)
- Immunologic Response to Antiretroviral Therapy by Age Among Treatment-Naive Patients in Sub-Saharan Africa
- Authors
- Kristen A. StaffordLaurence S. MagderLaura L. HungerfordJack M. Guralnik3 more author(s)...
- Description
This study investigated the association of age with CD4+ cell counts of HIV patients receiving antiretroviral treatment (ART) over a 4 year period. Data were collected from 126,672 previously treatment-naïve patients in 4 Sub-Saharan African nations. The baseline CD4+ count was measured at onset of ART and at 6-month intervals thereafter. The predictor variable was the age at initiation of therapy...
- Subject
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HIV Infections
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UMB Dataset
Antipsychotic Treatment Among Youth in Foster Care
- Authors
- Susan dosReisYesel YoonDavid M. RubinMark A. Riddle2 more author(s)...
- Description
Data from Medicaid fee-for-service and managed care claims from one Mid-Atlantic state were analyzed for this cross-sectional study. The dataset consists of a total of 16,969 youths under the age of 20 with a mental health diagnosis and a pharmacy claim for antipsychotic medication in 2003. Data for each individual includes demographic, Medicaid program category (ie, foster care, disabled), psychiatric...
- Subject
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Child, FosterMedicaidPsychotropic Drugs
- Timeframe
- 2003
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UMB Dataset
Amish Complex Genetic Disease Database
- Description
The Amish Research Group of the University of Maryland School of Medicine has been studying the Old Order Amish population in Lancaster County, PA, since 1993. This database currently consists of health-related data on over 7,000 adults resulting from studies ranging from population and basic science to clinical and translational research. Areas of investigation include: Cardiovascular Risk, Diabetes,...
- Subject
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AmishEthnic Groups/geneticsGenetics, PopulationHealth Status Indicators
- Access Rights
- Approval required
- Local Experts
- Alan R. ShuldinerBraxton C. Mitchell