This dataset represents a comparison of polypharmacy among youth with serious emotional and behavioral disorders enrolled in coordinated care services (CCS) versus those receiving traditional mental health services. Data were extracted from Medicaid administrative claims (demographic, diagnosis by ICD-9 code, procedure codes, and psychotropic medication), child welfare administrative records, and juvenile justice records. The final analytic sample included a total of 814 CCS youths and 993 in the traditional care cohort.
This qualitative inquiry investigated caregivers’ experiences with care management services for their child diagnosed with both cognitive and mental health needs. Study eligibility requirements included caring for a child 26 years of age or younger at enrollment, with an intellectual or cognitive developmental disability, and who also had a mental health condition. A total of 37 caregivers participated, 6 of whom were selected for in-depth interviews with the remaining 31 distributed among 5 focus groups. All sessions were recorded and subsequently transcribed verbatim. Data includes family demographics, child characteristics (e.g. school grade level, diagnoses, treatment, behavioral problems, etc.), and the factors promoting family engagement in care management