UMB Data Catalog
A project of the Health Sciences and Human Services Library-
Engaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs
UMB Dataset- Authors
- Susan dosReisAhrang YooMonique KimMelissa M. Ross2 more author(s)...
- Description
This qualitative inquiry investigated caregivers’ experiences with care management services for their child diagnosed with both cognitive and mental health needs. Study eligibility requirements included caring for a child 26 years of age or younger at enrollment, with an intellectual or cognitive developmental disability, and who also had a mental health condition. A total of 37 caregivers participated, 6 of whom were selected for in-depth interviews with the remaining 31 distributed among 5 focus groups. All sessions were recorded and subsequently transcribed verbatim. Data includes family demographics, child characteristics (e.g. school grade level, diagnoses, treatment, behavioral problems, etc.), and the factors promoting family engagement in care management
- Subject
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CaregiversComorbidityDecision MakingDevelopmental Disabilities
- Geographic Coverage
- Maryland
- Timeframe
- 2014