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  • National Survey of State Medicaid Psychotropic-Monitoring Programs Targeting Youth
    UMB Dataset

    Authors
    Susan dosReis
    Ming-Hui Tai
    Wendy Castillo Camelo
    Gloria Reeves
    Description

    Officials from Medicaid programs in all 50 states and the District of Columbia were invited to participate in a telephone survey assessing psychotropic-monitoring programs targeting youth. 38 completed the survey which was administered between August 2011 and December 2012. This dataset includes information about program characteristics, implementation strategies, review agency, professional oversight, periodic review, psychotropic drug class, concomitant use, and prescriber credentials.

    Subject
    Medicaid
    Psychotropic Drugs
    Geographic Coverage
    United States
  • Antipsychotic Treatment Among Youth in Foster Care
    UMB Dataset

    Authors
    Susan dosReis
    Yesel Yoon
    David M. Rubin
    Mark A. Riddle
    2 more author(s)...
    Description

    Data from Medicaid fee-for-service and managed care claims from one Mid-Atlantic state were analyzed for this cross-sectional study. The dataset consists of a total of 16,969 youths under the age of 20 with a mental health diagnosis and a pharmacy claim for antipsychotic medication in 2003. Data for each individual includes demographic, Medicaid program category (ie, foster care, disabled), psychiatric diagnostic codes, and psychotropic medications by major therapeutic class.

    Subject
    Child, Foster
    Medicaid
    Psychotropic Drugs
    Timeframe
    2003
  • Psychotropic Polypharmacy Among Youths With Serious Emotional and Behavioral Disorders Receiving Coordinated Care Services
    UMB Dataset

    Authors
    Susan dosReis
    Benjamin Wu
    Eric J. Bruns
    Ming-Hui Tai
    2 more author(s)...
    Description

    This dataset represents a comparison of polypharmacy among youth with serious emotional and behavioral disorders enrolled in coordinated care services (CCS) versus those receiving traditional mental health services. Data were extracted from Medicaid administrative claims (demographic, diagnosis by ICD-9 code, procedure codes, and psychotropic medication), child welfare administrative records, and juvenile justice records. The final analytic sample included a total of 814 CCS youths and 993 in the traditional care cohort.

    Subject
    Child Behavior Disorders
    Medicaid
    Psychotropic Drugs
    Geographic Coverage
    Maryland
  • The Meaning of Attention-Deficit/Hyperactivity Disorder Medication and Parents' Initiation and Continuity of Treatment for Their Child
    UMB Dataset

    Authors
    Susan dosReis
    Matthew P. Mychailyszyn
    Sara E. Evans-Lacko
    Alicia Beltran
    2 more author(s)...
    Description

    This study investigated the relationship between caregivers’ early views of ADHD treatment and the decision to initiate and continue medication for their child. 48 caregivers of newly diagnosed children participated in qualitative, semistructured telephone interviews with 6 and 12 month follow-ups. Analysis of the initial interview responses revealed 4 categories associated with caregiver perspectives: a) illness oriented, b) problem oriented, c) generally acceptable and, d) unacceptable. This dataset includes demographic information, family history of psychiatric illness, comorbid diagnoses, use of medication, and transcripts of initial, 6 month, and 12 month follow-up interviews.

    Subject
    Attention Deficit Disorder with Hyperactivity
    Caregivers
    Psychotropic Drugs
    Geographic Coverage
    Maryland
  • Attitudes About Stimulant Medication for Attention-Deficit/Hyperactivity Disorder Among African American Families in an Inner City
    UMB Dataset

    Authors
    Susan dosReis
    Arlene Butz
    Paul H. Lipkin
    Julia S. Anixt
    2 more author(s)...
    Description

    This dataset consists of survey responses from 57 African American parents/caregivers whose child was receiving care for ADHD in a university-affiliated pediatric primary care unit. The 47 item questionnaire entitled Attitudes, Satisfaction, Knowledge, and Medication Experiences (ASK-ME) was developed by the primary author to assess views of stimulant medication for ADHD. In addition to demographic information, the dataset includes treatment characteristics, whether or not the child received counseling, and responses to 7 items specifically related to attitude toward medication. A copy of the survey is available from Dr. Susan dosReis upon request.

    Subject
    Attention Deficit Disorder with Hyperactivity
    Caregivers
    Psychotropic Drugs
    Geographic Coverage
    Baltimore (Md.)
  • Stigmatizing Experiences of Parents of Children with a New Diagnosis of ADHD
    UMB Dataset

    Authors
    Susan dosReis
    Crystal L. Barksdale
    Andrea Sherman
    Kate Maloney
    1 more author(s)...
    Description

    This dataset is the result of continued analysis of data collected from qualified, semistructured telephone interviews of 48 caregivers of newly diagnosed children. The initial evaluation of interview results focused on their early views of ADHD treatment and the decision to initiate and continue medication for their child (see “Related Datasets” below”). This study concentrated on how caregivers and their children experience mental health stigma. Responses were classified into 6 categories: a) concerns with labeling, b) feelings of social isolation and rejection, c) perceptions of a dismissive society, d) influence of negative public views, e) exposure to negative media and, f) mistrust of medical assessments. The dataset includes demographic, family history of psychiatric illness, comorbid diagnoses, characteristics associated with stigmatizing experiences, and transcripts of initial, 6, and 12 month follow-up interviews.

    Subject
    Attention Deficit Disorder with Hyperactivity
    Caregivers
    Psychotropic Drugs
    Social Stigma
    Geographic Coverage
    Maryland
  • Parental Perceptions and Satisfaction with Stimulant Medication for Attention-Deficit Hyperactivity Disorder
    UMB Dataset

    Authors
    Susan dosReis
    Julie Magno Zito
    Daniel J. Safer
    Karen L. Soeken
    2 more author(s)...
    Description

    247 caregivers of a child diagnosed with ADHD completed a survey to assess their attitude and level of satisfaction with their child’s stimulant treatment. The participants were recruited from six pediatric facilities associated with a large health maintenance organization (HMO). Eligibility requirements included: a) the child was under 20 years of age, b) had taken ADHD medication within the last 12 months and, c) the primary caregiver knew the type of stimulant prescribed. The 47 item self-administered Attitudes, Satisfaction, Knowledge, and Medication Experiences (ASK-ME) survey is comprised of 5 sections: medication treatment characteristics, knowledge assessment, attitude and satisfaction scales, and demographic characteristics.

    Subject
    Attention Deficit Disorder with Hyperactivity
    Caregivers
    Psychotropic Drugs
    Geographic Coverage
    Virginia