UMB Data Catalog
A project of the Health Sciences and Human Services Library-
Qualitative study of comprehension of heritability in genomics studies among the Yoruba in Nigeria
UMB Dataset- Authors
- Clement A. AdebamowoRasheed O. TaiwoJohn IpadeolaTemilola Yusuf3 more author(s)...
- Description
To address concerns about comprehension and adequacy of informed consent, qualitative data was collected to examine whether there are linguistic and cultural concepts used to communicate heritability of characters, traits, and diseases in an indigenous African population. Researchers conducted focus group discussions among 115 participants and key informant interviews among 25 stakeholders and key opinion leaders among Yoruba living in Ibadan, Nigeria. The resulting dataset was contributed to the INDIGENE study which uses qualitative research methods to elicit these words and use them to design “enhanced informed consent” forms that are compared with standard informed consent in a randomized trial.
- Subject
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Informed Consent/ethics
- Geographic Coverage
- International
- Access Rights
- Unrestricted access