UMB Data Catalog
A project of the Health Sciences and Human Services LibraryQualitative study of comprehension of heritability in genomics studies among the Yoruba in Nigeria
UMB Dataset
UID: 202
- Description
- To address concerns about comprehension and adequacy of informed consent, qualitative data was collected to examine whether there are linguistic and cultural concepts used to communicate heritability of characters, traits, and diseases in an indigenous African population. Researchers conducted focus group discussions among 115 participants and key informant interviews among 25 stakeholders and key opinion leaders among Yoruba living in Ibadan, Nigeria. The resulting dataset was contributed to the INDIGENE study which uses qualitative research methods to elicit these words and use them to design “enhanced informed consent” forms that are compared with standard informed consent in a randomized trial.
- Geographic Coverage
-
Ibadan (Nigeria)
Adult (19 years to 64 years)
Senior (65 years to 79 years)
Elderly (80 years and over)
-
Access via Indigene Study
genomics-related words in different languages and their English translations
- Access Restrictions
-
Unrestricted access
- Access Instructions
- A database of the words and concepts that were identified in the course of this study are publicly available on the Indigene Study website.
- Associated Publications
- Data Type
- Software Used
- Study Type
-
Observational
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