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  • SEER-Medicare Linked Database

    Alternate Title(s)
    Surveillance, Epidemiology and End Results-Medicare Linked Database
    Description

    This series of files links two large population-based sources providing detailed data about Medicare beneficiaries with cancer. The SEER (Surveillance, Epidemiology, and End Results) program consists of clinical, demographic, and cause of death information collected from tumor registries beginning in January 1, 1973. The Medicare contribution includes all claims for covered health care services from beneficiaries’ time of eligibility until death. Linkage is processed biennially by SEER and Centers for Medicare and Medicaid Services (CMS) staff. 95% of individuals age 65 and older are included in the SEER files. Due to privacy concerns, access to this database requires an application, SEER-Medicare Data Use Agreement (DUA), and documentation of institutional review board approval. Additionally, the National Cancer Institute’s information technology contractor assesses a processing fee the amount of which is dependent upon the type and number of files requested.

    Subject
    Cancer
    Population Characteristics
    Population Surveillance
    Geographic Coverage
    United States
    Access Rights
    Approval required
    Registration required
    Local Experts
    Arif Hussain

  • Circadian rhythms, fatigue and bright light therapy in adolescent cancer survivors
    UMB Dataset

    Authors
    Valerie E. Rogers
    Description

    This 2-phase study explored the differences in sleep and circadian activity rhythms between adolescents who were within 5 years of completing treatment for any type of cancer and healthy, age-matched controls; and trialed a morning bright light therapy intervention to gather preliminary evidence of its safety, feasibility and outcomes.

    Subject
    Cancer Survivors
    Sleep Wake Disorders
    Geographic Coverage
    United States
    Access Rights
    Registration required

  • Sleep, circadian rhythms and fatigue in children with CNS tumors hospitalized for high dose chemotherapy
    UMB Dataset

    Authors
    Valerie E. Rogers
    Belinda Mandrell
    Description

    This study tested a sleep promotion intervention (randomized controlled trial) in children with recently diagnosed central nervous system tumors admitted to the hospital for high dose chemotherapy in preparation for autologous stem cell rescue. We hypothesized that disturbed sleep of hospitalized pediatric oncology patients would be reduced by altering the hospital sleep environment. Therefore, a randomized, attention-controlled sleep intervention was implemented in children and adolescents with central nervous system tumors admitted for 6 days for high dose chemotherapy prior to stem cell transplant. Children and adolescents diagnosed with medulloblastoma or histologically similar tumor, 4 to 19 years and their parent were recruited over 3 years.Questionnaires used to gather the data were: Fatigue Scale-Child, Fatigue Scale-Adolescent, Fatigue Scale-Parent. Data was also obtained using actigraphy.

    Subject
    Central Nervous System/Cancer
    Sleep Wake Disorders
    Geographic Coverage
    United States
    Access Rights
    Unrestricted access