This dataset is the result of an investigation of caregivers’ management and treatment preferences for their ADHD child. From January 2013 through March 2015 a total of 184 caregivers of children 4 to 14 years of age were recruited from primary care, pediatric outpatient clinics, and support organizations in Maryland. The study explored caregiver variability and priorities when considering medication, change in management options over time, and preference for different treatment attributes. Data were collected using Best-Worst scaling and the Vanderbilt ADHD Diagnostic Parent Rating Scale (VADPRS). This dataset consists of caregiver and child demographic information, child diagnoses and treatment characteristics data, and caregiver preferences with regard to medication and observed and desired improvements in their child’s ADHD.
This data set consists of the results of a survey developed to examine substance use, psychosocial, and mental health variables in a sample of patients who received a liver transplant and were diagnosed with an alcohol-related liver disease. Participants were asked about their quantity, duration and frequency of alcohol and substance use prior to and following liver transplant. The Alcohol Use Disorders Identification Test (AUDIT), a 10-item measure for at risk drinking, assessed current alcohol consumption for participants who reported any past-year alcohol consumption. The Fagerstrom test assessed nicotine dependence using a six-item measure of nicotine dependence. The Patient Health Questionnaire (PHQ-9)(14) screened for depression symptomatology, and the Generalized Anxiety Disorder (GAD-7), a seven-item measure that assesses symptoms of worry and anxiety over the past two weeks (15) was used to screen for anxiety symptoms. The Interpersonal Support Evaluation List (ISEL-12) was used as a measure of social support. Other survey items included questions on demographic variables (i.e., marital status, employment, residency, history of incarceration) as well as substance use and mental health service utilization. Age, race/ethnicity, Model for End-Stage Liver Disease (MELD) score, insurance status, and transplant wait list time were extracted from patient medical records. A total of 67 individuals were surveyed.
The Medical Expenditure Panel Survey (MEPS) is a set of large-scale surveys of families and individuals, their medical providers (doctors, hospitals, pharmacies, etc.), and employers across the United States. MEPS collects data on the specific health services that Americans use, how frequently they use them, the cost of these services, and how they are paid for, as well as data on the cost, scope, and breadth of health insurance held by and available to U.S. workers. The two major components of MEPS are the Household Component and the Insurance Component.
The data includes, for each designated geographic area, employment and payroll data organized by NAICS. The North American Industry Classification System (NAICS) is used by the United States, Canada, and Mexico to classify businesses by industry. "This data is useful for studying the economic activity of small areas; analyzing economic changes over time; and as a benchmark for other statistical series, surveys, and databases between economic censuses. Businesses use the data for analyzing market potential, measuring the effectiveness of sales and advertising programs, setting sales quotas, and developing budgets. Government agencies use the data for administration and planning." (from website)
The World Health Survey was implemented by WHO in 2002–2004 in partnership with 70 countries to generate information on the health of adult populations and health systems. The total sample size in these cross-sectional studies includes over 300,000 individuals. Survey materials and data are available through the WHO World Health Survey Data Archive accessible from the WHS webpage. (From the WHO World Health Survey webpage).
The data, collected by survey, documents the perception that plastic surgery residents and fellows have of the training received in cosmetic surgery. Plastic surgery graduates who had completed either residency or fellowship training were identified through the list of candidates eligible for the 2017 oral examination in the United States as listed on the American Board of Plastic Surgery Annual Newsletter. An electronic 16 question survey was then sent to the eligible plastic surgeons.
This dataset consists of survey responses from 57 African American parents/caregivers whose child was receiving care for ADHD in a university-affiliated pediatric primary care unit. The 47 item questionnaire entitled Attitudes, Satisfaction, Knowledge, and Medication Experiences (ASK-ME) was developed by the primary author to assess views of stimulant medication for ADHD. In addition to demographic information, the dataset includes treatment characteristics, whether or not the child received counseling, and responses to 7 items specifically related to attitude toward medication. A copy of the survey is available from Dr. Susan dosReis upon request.
This pilot study tested the use of a best-worst scaling (BWS) instrument to aid caregivers of a child with mental health comorbidities in clarifying preferences for treatment outcomes. BWS methodology closely approximates real-life decision-making by requiring the selection of one “most important” and one “least important” among a group of competing attributes. 38 caregivers were recruited from support groups in Maryland from March through July of 2015. Criteria for participation were a) their child was 21 years or younger, b) was diagnosed with a developmental delay related to cognitive or emotional disability and, c) with a comorbid mental illness (i.e. ADHD, depression, anxiety, etc.). Subsequent to survey completion, the caregivers took part in one of 6 debriefing sessions to determine the ease of comprehension, relevance of the concepts, distinctiveness of the statements, and clarity of language. The dataset includes family demographics, child characteristics (diagnoses, type of treatment, etc.), session transcripts, and statistics associated with the caregiver responses to the attributes included in the BWS instrument.
247 caregivers of a child diagnosed with ADHD completed a survey to assess their attitude and level of satisfaction with their child’s stimulant treatment. The participants were recruited from six pediatric facilities associated with a large health maintenance organization (HMO). Eligibility requirements included: a) the child was under 20 years of age, b) had taken ADHD medication within the last 12 months and, c) the primary caregiver knew the type of stimulant prescribed. The 47 item self-administered Attitudes, Satisfaction, Knowledge, and Medication Experiences (ASK-ME) survey is comprised of 5 sections: medication treatment characteristics, knowledge assessment, attitude and satisfaction scales, and demographic characteristics.
The National Survey on Drug Use and Health (NSDUH) provides national and state-level data on the use of tobacco, alcohol, illicit drugs (including non-medical use of prescription drugs) and mental health in the United States. This annual survey involves interviews with approximately 70,000 randomly selected individuals. The survey cohort consists of U.S. civilian, noninstitutionalized population aged 12 years and older and includes residents in group quarters such as college dormitories, group homes, shelters, rooming houses, and military bases. Interviews are conducted in participants’ homes facilitated via the use of Computer Assisted Interviewing (CAI). NSDUH is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA), an agency of the U.S. Public Health Service in the U.S. Department of Health and Human Services (DHHS).