This study investigated the relationship between caregivers’ early views of ADHD treatment and the decision to initiate and continue medication for their child. 48 caregivers of newly diagnosed children participated in qualitative, semistructured telephone interviews with 6 and 12 month follow-ups. Analysis of the initial interview responses revealed 4 categories associated with caregiver perspectives: a) illness oriented, b) problem oriented, c) generally acceptable and, d) unacceptable. This dataset includes demographic information, family history of psychiatric illness, comorbid diagnoses, use of medication, and transcripts of initial, 6 month, and 12 month follow-up interviews.
This dataset consists of survey responses from 57 African American parents/caregivers whose child was receiving care for ADHD in a university-affiliated pediatric primary care unit. The 47 item questionnaire entitled Attitudes, Satisfaction, Knowledge, and Medication Experiences (ASK-ME) was developed by the primary author to assess views of stimulant medication for ADHD. In addition to demographic information, the dataset includes treatment characteristics, whether or not the child received counseling, and responses to 7 items specifically related to attitude toward medication. A copy of the survey is available from Dr. Susan dosReis upon request.