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  • Amish Complex Genetic Disease Database
    UMB Dataset

    Description

    The Amish Research Group of the University of Maryland School of Medicine has been studying the Old Order Amish population in Lancaster County, PA, since 1993. This database currently consists of health-related data on over 7,000 adults resulting from studies ranging from population and basic science to clinical and translational research. Areas of investigation include: Cardiovascular Risk, Diabetes, Bone Health, Blood Pressure, Vascular Imaging, Aging, Breast Tissue Density, Platelet Aggregation, Microbiome, Wellness, and Brain Imaging. Extensive genetic data (genotyping and sequencing) is also available.

    Subject
    Amish
    Ethnic Groups/genetics
    Genetics, Population
    Health Status Indicators
    Geographic Coverage
    United States
    Access Rights
    Approval required
    Local Experts
    Alan R. Shuldiner
    Braxton C. Mitchell
  • Comparison of Mortality and Hospital Utilization Patterns Between Old Order Amish and Non-Amish Caucasians
    UMB Dataset

    Authors
    Braxton C. Mitchell
    Magdalena I. Tolea
    Kelsey Shields
    Laurence S. Magder
    4 more author(s)...
    Description

    This dataset consists of comparisons of mortality and hospital discharge rates/diagnoses between Old Order Amish (OOA) living in Lancaster County, Pennsylvania, and non-Amish Caucasians. The Anabaptist Genealogy Database Version 5 (AGDB5) and the Framingham Heart Study (FHS) were utilized for the mortality statistics for each cohort, respectively. Additionally, OOA health-related data were collected from hospital discharge records from 4 Lancaster County hospitals while the National Hospital Discharge Survey (NHDS) was used for non-Amish Caucasians. For each discharge the principal diagnosis and up to 6 additional diagnoses were recorded using ICD-9-CM codes. The dataset consists of demographics, mortality statistics, hospital discharge and diagnoses data, as well as longevity and health-related comparison analyses between the two groups.

    Subject
    Amish
    Hospitals/utilization
    Longevity
    Geographic Coverage
    United States
  • Problem-Solving Courts, Street Level Bureaucrats, and Clients as Policy Agents in a Prostitution Diversion Program
    UMB Dataset

    Authors
    Corey S. Shdaimah
    Description

    This research examined newly implemented prostitution diversion programs in Baltimore City and Philadelphia from the perspectives of program participants and program staff. Via interviews, focus groups, and observations this qualitative longitudinal study examined the program participants’ motivations for participating in the problem-solving court models as well as how they negotiate with court professionals to meet their needs and achieved their goals. A series of 1 to 5 interviews per person were conducted during and after participation in the respective program. To explore concerns around trauma, substance abuse, and stigma 5 brief questionnaires were administered during the second interview. Also evaluated were quantitative data such as participant demographics, program take-up and compliance rates, and types of services requested. One-time interviews were also conducted with program social workers, public defenders, prosecutors, probation officers, and judges to explore personal and professional beliefs, resources constraints, and general views on program participants and prostitution. All interviews were audiorecorded and transcribed verbatim. Observations were also conducted in court, prison, probation, and street settings. Current partial dataset consists of 1 TXT README file, 8 document PDFs, and 21 interview PDFs and will be supplemented by additional materials as they become available

    Subject
    Sex Workers
    Geographic Coverage
    Baltimore (Md.)
    United States
    Access Rights
    Registration required