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Caregiver Treatment Preferences for Children with Attention Deficit/Hyperactivity Disorder
UMB Dataset

Alternate Titles(s): Caregiver Treatment Preferences for Children with ADHD

UID: 21

Author(s): Susan dosReis* * Corresponding Author
Description
This dataset is the result of an investigation of caregivers’ management and treatment preferences for their ADHD child. From January 2013 through March 2015 a total of 184 caregivers of children 4 to 14 years of age were recruited from primary care, pediatric outpatient clinics, and support organizations in Maryland. The study explored caregiver variability and priorities when considering medication, change in management options over time, and preference for different treatment attributes. Data were collected using Best-Worst scaling and the Vanderbilt ADHD Diagnostic Parent Rating Scale (VADPRS). This dataset consists of caregiver and child demographic information, child diagnoses and treatment characteristics data, and caregiver preferences with regard to medication and observed and desired improvements in their child’s ADHD.
Timeframe
2013 - 2015
Subject of Study
Human
Subject Domain
Attention Deficit Disorder with Hyperactivity
Caregivers
Population Age
Adult (19 years to 64 years)
Child (2 years to 12 years)
Adolescent (13 years to 18 years)
Subject Gender
Female
Male
Keywords
ADHD
Diagnosis
Parents
Time Factors
Treatment Preference
Access via Author

Access Instructions
Please contact Dr. Susan dosReis
Associated Publications
dosReis S, Park A, Ng X, Frosch E, Reeves G, Cunningham C, Janssen EM, Bridges JFP. (2017). Caregiver Treatment Preferences for Children with a New Versus Existing Attention-Deficit/Hyperactivity Diagnosis. Journal of Child and Adolescent Psychopharmacology, 27(3), 234-242. DOI: https://doi.org/10.1089/cap.2016.0157
Ross M, Nguyen V, Bridges JFP, Ng X, Reeves G, Frosch E, dosReis S. (2018). Caregivers’ Priorities and Observed Outcomes of Attention-Deficit Hyperactivity Disorder Medication to Their Children. Journal of Developmental & Behavioral Pediatrics, 39(2), 93-100. DOI: 10.1097/DBP.0000000000000530
dosReis S, Ng X, Frosch E, Reeves G, Cunningham C, Bridges JF. (2015). Using Best-Worst Scaling to Measure Caregiver Preferences for Managing their Child’s ADHD: A Pilot Study. Patient, 8(5), 423-431. DOI: 10.1007/s40271-014-0098-4
Ng X, Bridges JF, Ross MM, Frosch E, Reeves G, Cunningham CE, dosReis S. (2017). A Latent Class Analysis to Identify Variation in Caregivers’ Preferences for their Child’s Attention-Deficit/Hyperactivity Disorder Treatment: Do Stated Preferences Match Current Treatment? Patient, 10(2), 251-262. DOI: 10.1007/s40271-016-0202-z
Data Type
Survey
Software Used
Microsoft Excel

Spreadsheet software

SAS 9.3

Advanced analytics, multivariate analyses, business intelligence, data management, and predictive analytics

Stata 13

Software for statistics and data science

Study Type
Observational
Dataset Format(s)
SAS
Data Collection Instruments
Best-Worst Scale (BWS)
Vanderbilt ADHD Diagnostic Parent Rating Scale (VADPRS)
Grant Support
MH093502/National Institute of Mental Health