UMB Data Catalog

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  • UMB Dataset

    Patient Consent to Publication and Data Sharing in Industry and NIH-Funded Clinical Trials

    Authors
    O'Mareen Spence
    Richie Onwuchekwa Uba
    Seongbin Shin
    Peter Doshi
    Description

    Clinical trial participants are often motivated by the altruistic assumption that study results will contribute to medical knowledge. Additionally, the sharing of research data is rapidly developing into an ethical standard. An evaluation of 144 blank (sample) informed consent forms (ICF) was undertaken to determine the extent to which clinical trial participants were apprised of researchers’ intent...

    Subject
    Informed Consent
    Access Rights
    Unrestricted access