UMB Data Catalog

A project of the Health Sciences and Human Services Library

Filter by

of 1 Next >
Results Found: 2
  • UMB Dataset

    Patient Consent to Publication and Data Sharing in Industry and NIH-Funded Clinical Trials

    Authors
    O'Mareen Spence
    Richie Onwuchekwa Uba
    Seongbin Shin
    Peter Doshi
    Description

    Clinical trial participants are often motivated by the altruistic assumption that study results will contribute to medical knowledge. Additionally, the sharing of research data is rapidly developing into an ethical standard. An evaluation of 144 blank (sample) informed consent forms (ICF) was undertaken to determine the extent to which clinical trial participants were apprised of researchers’ intent...

    Subject
    Informed Consent
    Access Rights
    Unrestricted access
  • UMB Dataset

    Qualitative study of comprehension of heritability in genomics studies among the Yoruba in Nigeria

    Authors
    Clement A. Adebamowo
    Rasheed O. Taiwo
    John Ipadeola
    Temilola Yusuf
    3 more author(s)...
    Description

    To address concerns about comprehension and adequacy of informed consent, qualitative data was collected to examine whether there are linguistic and cultural concepts used to communicate heritability of characters, traits, and diseases in an indigenous African population. Researchers conducted focus group discussions among 115 participants and key informant interviews among 25 stakeholders and key...

    Subject
    Informed Consent/ethics
    Access Rights
    Unrestricted access