UMB Data Catalog

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Results Found: 4
  • UMB Dataset

    Engaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs

    Authors
    Susan dosReis
    Ahrang Yoo
    Monique Kim
    Melissa M. Ross
    2 more author(s)...
    Description

    This qualitative inquiry investigated caregivers’ experiences with care management services for their child diagnosed with both cognitive and mental health needs. Study eligibility requirements included caring for a child 26 years of age or younger at enrollment, with an intellectual or cognitive developmental disability, and who also had a mental health condition. A total of 37 caregivers participated,...

    Subject
    Caregivers
    Comorbidity
    Decision Making
    Developmental Disabilities
    Timeframe
    2014
  • UMB Dataset

    Best-Worst Scaling to Prioritize Outcomes Meaningful to Caregivers of Youth with Mental Health Multimorbidities: A Pilot Study

    Authors
    Susan dosReis
    Wendy Castillo Camelo
    Melissa M. Ross
    Saad Tariq
    Description

    This pilot study tested the use of a best-worst scaling (BWS) instrument to aid caregivers of a child with mental health comorbidities in clarifying preferences for treatment outcomes. BWS methodology closely approximates real-life decision-making by requiring the selection of one “most important” and one “least important” among a group of competing attributes. 38 caregivers were recruited from support...

    Subject
    Caregivers
    Comorbidity
    Decision Making
    Developmental Disabilities
    Timeframe
    2015
  • UMB Dataset

    Attribute Development Using Continuous Stakeholder Engagemement to Prioritize Treatment Decisions: A Framework for Patient-Centered Research

    Authors
    Susan dosReis
    Wendy Castillo Camelo
    Melissa M. Ross
    Marcy Fitz-Randolph
    2 more author(s)...
    Description

    This study investigated a systematic process for using qualitative data to identify attributes and levels most important to caregivers in making health care treatment decisions. Grounded theory methodology was selected for its suitability in assessing an individual’s response to a specific experience. Stakeholder advisors worked with academic researchers in all phases of the project. A total of 48...

    Subject
    Caregivers
    Comorbidity
    Decision Making
    Developmental Disabilities
  • UMB Dataset

    Ethical decision-making climate, moral distress, and intention to leave among ICU professionals in a tertiary academic hospital center

    Authors
    Henry Silverman
    Tracey Wilson
    Samuel Tisherman
    Raya Kheirbek
    10 more author(s)...
    Description

    A cross-sectional questionnaire was performed between May and August 2021 involving 206 nurses and physicians working in intensive care units (ICUs) in a large urban academic hospital. The study used the Ethical Decision-Making Climate Questionnaire (EDMCQ), the Measure of Moral Distress for Healthcare Professionals (MMD-HP) tool, and Pearson’s correlation coefficient to study the respondents' ethical...

    Subject
    Attitude of Health Personnel
    Decision Making/ethics
    Timeframe
    2021
    Access Rights
    Unrestricted access